UC Health Data Day 2019: Featuring the Learning Health (Record) System

A photo of UC Health Data Day 2019

By Marissa Ventura.¬†Think of it:¬†Every time a physician, nurse, or other clinician¬†sees patients and intervenes, the data collected¬†are¬†turned¬†into opportunities¬†to improve care¬†for¬†all¬†patients, now¬†and in the future.¬†That‚Äôs¬†the¬†‚ÄúLearning¬†Health¬†(Record)¬†System‚ÄĚ ‚Äď both¬†a¬†key theme and¬†the¬†title of the keynote address at¬†the¬†2019¬†UC Health Data Day.¬†¬†

The Institute of Medicine has defined the¬†learning healthcare system¬†as¬†one in¬†which¬†‚Äúscience, informatics, incentives, and culture are aligned for continuous improvement and innovation, with best practices seamlessly embedded in the delivery process and new knowledge captured as an integral by-product of the delivery experience.‚Ä̬†

‚ÄúWhile the electronic health record (EHR) system¬†does not yet fully support¬†the¬†learning health care system¬†that we dream of, it is the body of work that we need to undertake,‚ÄĚ said keynote speaker Philip R.O. Payne, Ph.D.,¬†director of the Institute of Informatics, Washington University School of Medicine¬†(see photo).¬†‚ÄúWe need to instrument care delivery, laboratory, and everyday environments so that we can generate high-quality phenotypes that benefit patients.‚Ä̬†¬†

Nearly 300 scientists, students and staff interested in using health data to unleash the next generation of discoveries in biomedical and health care delivery attended this second annual event, held June 14. Another 120 plus participated via live streaming on YouTube. 

‚ÄúOur annual¬†Health Data Day¬†is¬†focused on breaking down barriers so we can better use clinical data for research and improving health¬†care,‚ÄĚ said Mike Hogarth,¬†M.D.,¬†who spearheaded the meeting and¬†is¬†UC San Diego Health‚Äôs¬†clinical¬†research¬†information¬†officer.¬†¬†

The one-day event brought¬†together¬†Payne and speakers from four UC Health campuses ‚ÄstSan Diego,¬†San Francisco,¬†Irvine,¬†and Davis¬†‚Ästat UC San Diego‚Äôs Medical Education and Telemedicine building.¬†¬†

‚ÄúIt was a day to share the tools available to researchers across the University of California¬†and demonstrate practical ways to use these data resources to improve patient care, facilitate research, and improve our educational resources,‚ÄĚ said Andrew Greaves,¬†enterprise cloud¬†architect, Information Services, and co-planner of the event.¬†¬†

Among the tools discussed were:  

  • Epic‚Äôs¬†SlicerDicer¬†for¬†insights¬†on¬†population health and quality improvement¬†
  • The UCSF Information Commons to access de-identified patient information in a HIPAA-compliant way¬†
  • Blockchain¬†as another way to share health care data¬†
  • The new UCSD Health Data Cloud¬†designed to provide researchers with easier access to de-identified patient data¬†

 Practical applications of these tools were presented in several case studies. This included presentations on how clinical data has been used to:   

  • Predict sepsis or COPD exacerbation¬†
  • Determine¬†the¬†uptake of advanced-care planning for older adults with serious illness¬†
  • Create¬†predictive modeling in glaucoma¬†

¬†‚ÄúI¬†continue to be¬†impressed by the¬†power of the University of California‚Äôs academic medical centers¬†and our¬†external¬†partners to be collaborative in efforts to bring research and clinical applications together,‚ÄĚ said¬†UC San Diego Health¬†Chief Information Officer¬†Christopher¬†Longhurst.¬†‚ÄúOpening these avenues of discussion benefits our health systems, providers and,¬†most importantly, our patients.‚Ä̬†¬†

Marissa J. Ventura is communications lead, Information Services and Quality, UC San Diego Health. Marissa J. Ventura is communications lead, Information Services and Quality, UC San Diego Health.

Leave a Comment

Your email address will not be published. Required fields are marked *